My Thalassemia Diaries Pt – 1

I was born on 27.9.1985 and was looking like a happy & normal child but few months in and doctors started noticing a week and anaemic kid and did some tests which were normal. In short they didn’t had a clue whats happening.

Just to give you a brief sense on what Thalassemia is, it is a blood disorder which is passed down to every generation unwillingly. For rest of the knowledge please enjoy reading google, i am pretty sure there will be better info there then me sharing here.

So, unknowingly both my parents were thalassemia carriers and i came out to be Beta Thalassemia Major “this kind of heavy name is definitely suiting my personality for sure”.
Then it was detected in June of 1986 that I have Thalassemia Major and as per the doctor of that time who delivered the news I will be needing blood transfusions in every 15 days all my life and my life expectancy will be not more then 11 – 12 years.
So that day my Mom & Dad took a challenge keeping me in mind that we will fight this till a solution comes through medical advancements.
So from that day i was kept as a normal kid and was allowed to function as a normal kid only…

Doctor visits was routine for me and transfusions were like an additional Sunday.
But as Age progressed to 16 – 17 the side effects of thalassemia started showing on thorough check ups doctor gave me severe osteoporosis and severe hormonal imbalance & some more to live with…

But with all this and proper care given by family I am able to fight and win against Thalassemia and sometimes I feel it has turned from my ailment to my strength.
Since long when I can remember I was taught by my parents to stay happy and stay positive always. Maybe that’s why i don’t take much load of anything in my life.

For me life is one transfusion to other transfusion and then in the middle…

it was just recent my transfusion got free at 11 AM and I was in my office at 11.30 resuming my work… so I think after 33 years it just don’t matters much, more of a part of life kind of a thing for us.

I remember it was one post transfusion after noon approx 12.30 and i was in office with my medical tape just to cover the location where the needle was pricked for transfusion. So this guy who himself is a doctor caught this and recognised the bandage (Even after my super try to hide it under the watch) and asked, bro what happened…???
So i gave him a reply bro just got free from my transfusion and as our meeting was fixed regarding your car, So i am here for your help. And I swear the guy lost his mind and he started pressuring me to go and have rest and argued a lot for me to be not there that time.

I think, keep walking ahead spirit comes to us Thalassemia kids by birth somehow as few of other thalassemia kids who I know in Ajmer are also same type of me. So its nothing special for us.

More Thalassemia Diaries to Follow Soon…

Laters
SG

Thats me having my transfusion

A Brief Intro…

I am a 33 year Young Entrepreneur / businessman by profession who refuses to act a day above 21. Which we all so wish to do so time to time but ya i do it a little more often. Roaming around on my wheelchair one city at a time… A Proud passionate member of Round Table India.

Born in Jodhpur & Brought-up in the beautiful city of Ajmer which i call home.

I am passionate about my work as well and i do try to give 200% in my day on any task that i take or any challenge that needs to faced from time to time.

So, many people will like to know why i Started this blog, what was the idea, the thought process behind it etc etc…???

So for all my readers who wanted to know this the idea is to share my life experiences with everyone so someone could benefit out of them. The people who know me well knows why i am doing it. The challenges that has to be faced by being a differently abled person and the ways to overcome them. more about in how i am differently abled tomorrow… let us go slow in knowing about me, which could be easy to digest and i hate reading long blogs… So, a Small bite sized blog but on a very frequent basis.

Have a Great Day Ahead… more to come soon…

And don’t forget to write with any comments, suggestions or general love…

Ciao

Sorabh Gehlot

2 Deaths & 1 Question…???

Are we doing enough for the people who are fighting with mental illness wether it is depression, Bipolar disorder, Schizophrenia or a severe case of OCD…???

Means seriously I myself didn’t gave a view to the girl who died not less then a week ago where many of the Bollywood people were showing respects in their own way but seeing the news of Sushant singh really raised a question in my mind. There is something really wrong happening in Bollywood…???

We as normal people think that an A Lister Celeb would have his life & finances sorted but sometimes the glam life & flamboyant lifestyle make us unaware of the other factors such as pressures related to work or life etc are many a time goes for a toss.

We definitely should do something to take care of this situation and literally stop these kind of depression related suicides. Being a borderline depression patient myself in the past it is a subject which is closer to the heart.

I so wish that the medical facilities could be more effective in this particular area and our country could have a little more openness and little less self shame in order to break out that barrier which keeps us under wraps and leads to this kind of stage where only option is to do a suicide.

Guys & Girls please talk to the people, plan something with friends, involve yourself in some activity. Life is good and can be good if we want it to be.

Stay indoors & Stay safe

Laters…
SG

Quarantine Times – WE ARE READY

Evidently Covid19 fear will be there for a long time, there’s no denying the fact. But as it was said in Jurassic Park First movie “Life finds it way”. So now I am thinking that we are in that stage where life is finding its way out of lockdown.

We at Gehlot Ford & National Tractors and Motors resumed our partial operations only for workshop purposes. But being first day we were not hoping for much of customer so we just did cleaning & checkin of the machines etc so that we can be fully ready as little more of lockdown eases up.

To be very honest first day back felt very confusing and odd to many people. confusing to us that how to get whole operation running with 30% of staff and for staff it was little odd because of social distancing measures, sanitisers and infrared thermometer being pointed to them in every 3 hours.

But I feel this is going to be the new norm now even after lockdown eases and Covid19 fear goes away.

Was talking to my staff and literally some of them thanked and were very happy coming to office mostly because their boredom was going and some were happy with the sanitisation practices we are adopting in the routine life.

Let’s take baby steps and keep the ball rolling under guidelines of government. And pray to God with a hope that tomorrow would be better then today.

Stay safe

Laters
SG…!!!

Quarantine Times – Is Liquor Shopping Absolutely Necessary…???

Had been reading in news papers, getting lot os forwards on whatsapp and TV News Channels blowing up this news regarding reopening of Liquor Shops across country makes my head blow off. Even local police officers are going crazy and opposing this decision in muted voice, well everyone knows that there are very slim chances that their opinion is not going to get considered.

Seriously in order to have a good time of few hours we are playing with lives keeping Social Distancing rules in the dustbin. Why cant we just give it a chill for few weeks more. Is Liquor more important then life.

The stupidest part which was showcased on TV news was an interview of guy who was standing in line of liquor shop since 2.30 AM and he was saying it so proudly & audacity which made a question arise in my mind “Cant we do away with Liquor for sometime”…???

I totally agree that it is sometimes required to curb anxiety which is at its peak in these lockdown times but does it weighs more then the loss of life or risk of infection.

If government is so concerned about generating revenue and money for functioning then they have done an excellent work but it is my opinion that they have royally overlooked the cost of life & cost of Covid19 infections. We should definitely look forward to USA & European Countries for the kind of mess this whole infection has caused till now. Just a suggestion regarding the safeguard of human life and lowering the risk of infection, Govt should allow home delivery of liquor for sometime.

I know that I am going to get lot of backlash with respect to expressing my opinion & thought process but seriously saying I couldn’t have stopped myself more.

Stay indoors, Stay safe

Laters
SG…!!!

Quarantine Times – Irony of Life

Although I was suppose to write this 2 days back but was stuck with some things here and there. The Irony happened when back to back two of the powerhouse actors lost their battle to Cancer.

Sometimes in life when we come across these kind of things we face the realities of life. It don’t matters how much medical science has advanced, or how good doctor or hospital you can afford, or how long your battle is. In majority of the cases it wins and sometimes to just satisfy the ego of mankind cancer lets us win.

The irony happened with both of them that they passed away in such a lockdown time that they had a very small sendoff’s which they didn’t definitely deserved. But rules are rules and us being the responsible citizen have to follow them to the last dot. But major sadness happened with Irrfan Khan as he was not able to go and attend his mother’s funeral few days before, He definitely could have been there for her one last time.

I personally felt that the role of media or insider paparazzi who leaked the home pics of Rishiji’s corps was so bad. Seriously we should respect the privacy of the departed soul’s family. Seeing Ranbeer kapoor’s pic watching his father was just so heartbreaking. they should not have surfaced to the media.
I feel it’s just because of few rupees the pics got clicked and shared for the media and paparazzi.

One who had came in this world will definitely have to go “IT IS A FACT” it just a matter of time. If it is your time then you will go and if its not then whatever you do you wont go. We should not crib about how long the life is, We should ponder how Large my life is. There’s this dialogue in movie Neerja “babumoshay zindagi lambi neahi badi honi cahiye “. In the end we should definitely ask “Have I made It Large”

Laters
SG…!!!

Quarantine times – Round Table Party

Adopt, Adapt & Improve its our motto of Round Table International .Lockdown time is suppose to get us distancing socially with other people but it is definitely necessary to meet people & have fun to curb lockdown anxiety. We just need to change the way we have fun as we are doing with our work and other things. With all this quarantine we ADOPT the way of life which we were accustomed to. We ADAPTed living with this Quarantine & Lockdown across the world & Finally we IMPROVE by doing a crazy party.

Insane fun happened last night when Round table international President Tr. Sabastian and Vice President Tr. DK Singh took this initiative and did a DJ night for all the Round Table members sitting at homes. We just needed nice speakers to have fun.

A very nice idea which was supported well by our Tr. Sushein AKA DJ Sue from Delhi. He played a mix of dance numbers ranging from english to Bollywood songs specially loved the english classic playlist which he executed for 20 minutes straight.

The whole idea was executed on Zoom Video conferencing app and was shared live on Facebook as well for tablers to enjoy. Seriously guys there were more than 250 people at one point of time all enjoying at the same time. Extra ordinary times require extraordinary measures which was well displayed here by the organizers and people behind this idea. Was astonished to see the people from all over the Globe ie Canada, Estonia, Belgium, UK, Netherland to name a few.

Round table international is definitely the original facebook, a place to meet friends and like minded people. There are very less places & events where people from all around the globe come together for a collective cause here today it was having fun.

Although it would have been so better if the party was in person rather then online, no guesses of what could have been quantum of fun but as I had said earlier also sometimes we have to play the hand we have dealt.

Special Thanks to Tr. DK Singh, Tr. Sushin, Tr. Sahil Jindal & Tr. Sabastian for pulling this off royally

Looking forward for more online parties soon.

Laters
SG…!!!

Quarantine Times – Extraction Movie Views…

Netflix just released this movie today Extraction, as it is very much self explanatory that what it would have been based on. I totally loved this as seriously the action sequence was very much notable.

Direction was done by none other then Stuntman turned Director Sam Hargrave (No wonder action sequences were on point). He surely kept Chris Hemsworth & Randeep Hooda on their toes.

Acting of both these actors were superb and award worthy. Randeep Hooda was a great match for Chris and they surely commanded their own screen time and aced it like pros. Cant understand why Randeep Hooda is less visible in Bollywood.

Best part was the single take 10 minute action sequence which was well choreographed by Action director and well executed by both the actors, They definitely proved their acting mettle. A must watch for action movie lovers.

The other notable actors who got their presence felt were Golshifteh Farahani & Young Rudraksh jaiswal who played the kidnapped kid Ovi Mahajan so well . So wish Pankaj Tripathi could have a little more screen time. But he definitely performed at par in his 30 second role. David Harbour’s role could have been better and seriously his action sequence with Chris could have been better and ended a little different way.

All in all a good one time watch & well 2 hours spent during this lockdown.

Looking forward for more action packed movie from Netflix.

Stay indoors, Stay safe

Laters
SG…!!!

Quarantine Times – Silly Bedfellows

As some of people might know from my Facebook profile and Instagram page that I got a doggo last year to fill the void created by sudden suicide of my previous one. So while searching for breeds I finalised on repeating pug as my dog but then thought process got fluctuated and I finally got a doggo of a breed that i fascinated a lot, I got a French Bulldog or fondly said as Frenchie.

This doggo who I fondly call YODA (named after Star Wars character) got attached to me in the first hour of his arrival and slowly & steadily he started following orders and travelled with me even to many places. And don’t leaves my side whenever possible for him.

But the hight of attachment happened once when I was in office and he was with me for his playing time and he attended with me in a meeting and sat in the lap and listened so patiently to the person sitting opposite to me, he evidently asked me bhaiya “if he didn’t likes what I say will he attack me or what”

The other episode which happened where i seriously felt happy was once when me and my mom was having a heated discussion and her pitch was high, so Yoda who was kind of sleeping suddenly sprung in action and started barking on her. And since that day I realised that yes dogs are definitely men’s best friend.

The strangest thing happens is at night he like to sleep on my pillow which gets a little problematic as too much closeness is also harmful many a times. But ya seeing his affection and sense of security towards me I let him crash on feet.

All in all the breed is good for the people like me who are looking for a small, easy maintenance & great travel companion & guard yet playful doggo. Just a word of caution, get a dog only if you can commit and give him time coz a pet is part of our life but for it we are his whole life.

Laters
SG…!!!

Quarantine Times – Silly thoughts

Today’s news which came out from sources of local media and friends is the sudden rise in the Covid19 earlier this month there were 5 cases and today we had crossed 100 and earlier it was contained but to this day new areas are popping up.

The lockdown started on 22nd of march with the voluntary Janta curfew then since its the lockdown so if we count the days of major non movement of people it comes to around lockdown day 29 – 30.

The baffling question or the thing which is out of my understanding is when the Corona virus’s incubation is 3 – 14 days max than how infection is growing in such exponential numbers in such later days of the lockdown. As if this thing continues will we be able to get out of the lockdown anytime soon.

The news just keeps on flowing that the majorly people came to town during the lockdown under the radar and are ragpickers who were kept by the administration in the specified locations made for the ragpickers/ beggars during the lockdown. How can they break the security barrier and roam around the city creating problem for other people & the whole town

And the news just came in the media regarding the fight between doctors and the government administration. Are you guys serious…??? At this point of time inter – departmental rift is beneficial for the city and the cause…??? I am like not bloody able to think that what kind of numbers will come in the next few days or so but the news is definitely not very promising.

The curve was suppose to flatten but it is definitly looking on a rise as of now across the state which is not good for people who are sacrifising so much by staying in homes, shutting the businesses & taking unimaginable amount of stress.

Guys just a request stay real safe and stop going out as this problem is on a rise and no solution is there with anyone expcept us and the doctors.

Stay Indoors & Stay Safe

Laters
SG…!!!

Quarantine times – Back to basics

They say “Home is where the heart is” even Elvis Presley sang a song for it. but in my case Home is where is my bed is my bed is bae to me.

In the earlier days of lockdown my Room’s AC got screwed and stopped working. So i shifted to the other room and was happy there but last night that also stopped working and i am in a thick soup shit where do i land up now.

Luckily after making a few calls here and there I found an AC Repair Guy. My guard got him and i was waiting outside with a bottle of sanitiser so i can be sure of him not carrying any corona in my house. But must say that guy had his own sanitiser, mask, gloves so i was released seeing all this. I let him enter and he repaired all 3 of my defective AC in 2 hours.

Seriously guys this I felt lot of times that your bed is the best in the whole wide world as i was out of my room from a long time so coming back felt good. Late night movie, Late Night Sheesha & Late Night Redbulls, the room party was a rocker…

Another sad news came out today on Covid19 front that Ajmer had got 35 more positive in 1 day. The situations just are becoming grim day by day and Ajmer is turning into a hotspot for sure. let’s see all goes well in a couple of days.

Laters
SG…!!!

Quarantine Times – Sad Times

As we all know that lockdown is going on, trust me I had faced a lockdown of myself when I was in bedrest. But to be very frank it was not as sad as the corona lockdown is. At least I had different people to talk to and matters to look for.

Ajmer being a small town has a greater risk for Covid19 infections as the overall market is small and in 10 kms radius the whole city ends.
In last 3 days we have 15 new cases of corona and it is getting uncomfortably closer to home. We were hoping to have opening of business again 2 days back but now we are facing total curfew by the administration.

This baffeling news just came in from different sources that there was a persson who was in quarantine by the government and his report was pending & before the report came, he jumped all the security and ran away from the quarantine shelter. Just a huge Question which seriously popped up in my mind is how the hell people can be so careless, its just not about your own life at stake it is lives of a everyone in a city is at a stake.

Just wishing that people take these kind of little more seriously rather then playing with lives of masses and effort of the whole system around which is looking to flatten the curve or avoid major damages.

And after this news our application for opening of business (Which is approved by the Central government) got rejected again. Although local administration & Government is definitely not wrong taking this step but it would have been a huge help to the farmers who are still to this day are in their farms trying to provide us food 3 months down the line.

Lets see if the situation gets in control soon or else its just a matter of time before a big time Corona bomb explodes and wreak havoc in our beautiful country.

Stay Indoors, Stay Safe

Laters
SG…!!!