I was born on 27.9.1985 and was looking like a happy & normal child but few months in and doctors started noticing a week and anaemic kid and did some tests which were normal. In short they didn’t had a clue whats happening.
Just to give you a brief sense on what Thalassemia is, it is a blood disorder which is passed down to every generation unwillingly. For rest of the knowledge please enjoy reading google, i am pretty sure there will be better info there then me sharing here.
So, unknowingly both my parents were thalassemia carriers and i came out to be Beta Thalassemia Major “this kind of heavy name is definitely suiting my personality for sure”.
Then it was detected in June of 1986 that I have Thalassemia Major and as per the doctor of that time who delivered the news I will be needing blood transfusions in every 15 days all my life and my life expectancy will be not more then 11 – 12 years.
So that day my Mom & Dad took a challenge keeping me in mind that we will fight this till a solution comes through medical advancements.
So from that day i was kept as a normal kid and was allowed to function as a normal kid only…
Doctor visits was routine for me and transfusions were like an additional Sunday.
But as Age progressed to 16 – 17 the side effects of thalassemia started showing on thorough check ups doctor gave me severe osteoporosis and severe hormonal imbalance & some more to live with…
But with all this and proper care given by family I am able to fight and win against Thalassemia and sometimes I feel it has turned from my ailment to my strength.
Since long when I can remember I was taught by my parents to stay happy and stay positive always. Maybe that’s why i don’t take much load of anything in my life.
For me life is one transfusion to other transfusion and then in the middle…
it was just recent my transfusion got free at 11 AM and I was in my office at 11.30 resuming my work… so I think after 33 years it just don’t matters much, more of a part of life kind of a thing for us.
I remember it was one post transfusion after noon approx 12.30 and i was in office with my medical tape just to cover the location where the needle was pricked for transfusion. So this guy who himself is a doctor caught this and recognised the bandage (Even after my super try to hide it under the watch) and asked, bro what happened…???
So i gave him a reply bro just got free from my transfusion and as our meeting was fixed regarding your car, So i am here for your help. And I swear the guy lost his mind and he started pressuring me to go and have rest and argued a lot for me to be not there that time.
I think, keep walking ahead spirit comes to us Thalassemia kids by birth somehow as few of other thalassemia kids who I know in Ajmer are also same type of me. So its nothing special for us.
More Thalassemia Diaries to Follow Soon…